Monday, October 26, 2015
Cardiology update
We had a great appointment today! When Connor was born he had a pda and 2 wholes in his upper chamber of his heart. Today we had our first echo since he was a month old. Praise can only be given to God because both holes have closed. He only has a pda and it is small. So we will go back when he's four (2 years from now) and see if it's closed. So pray that it closes.
Tuesday, October 13, 2015
Down Syndrome Awareness Month- October
Did you know that Connor should have never made the journey from conception to birth alive? I'm in this pretty awesome facebook group for families with Trisomy 21. The organizer, Dixie, is a Biochemist and Mom of a child with Trisomy 21. Her daughter is older and she has devoted her life to studying the bio chemistry of trisomy 21. (For you science lovers- you are gonna eat this next part up) She says, "the cellular disturbance caused by the domino effect of hundreds of excess proteins is more than enough to completely stop the cells (all 3 trillion of them) that make up the brain and body of a child with DS from functioning beyond a few rudimentary divisions. In fact, only 20% of fertilized eggs with an additional 21st Chromosome actually survive." 20%!!!!!
Yet, here stands my Connor, my miracle, that can only be explained by God's awesomeness. Its our proof of how amazing God is. That life is more than cells. His little body, made of cells, should have never been able to divide. Not even once. And if we consider his surviving parts (all of them), fingers, toes, etc. What about the little persons that survived the journey with hearts that should never have beaten? That a tiny tiny hole or injury to the heart can stop it from beating. Science tells us that Connor shouldn't be here, but here he is.
I don't know about you, but I know that my God is a BIG BIG God. He doesn't always have to explain Himself. He has put Connor here to do big things. To touch peoples lives, to plant and even lead them into a personal relationship with Him. He's already reinforced in me to trust that God has a bigger plan then I can see or even understand. The Love and Sovereignty of God is enough.
Let's become comfortable with Difference! Its in that uncomfortableness that we draw close to Him and the unknown becomes familiar.
Yet, here stands my Connor, my miracle, that can only be explained by God's awesomeness. Its our proof of how amazing God is. That life is more than cells. His little body, made of cells, should have never been able to divide. Not even once. And if we consider his surviving parts (all of them), fingers, toes, etc. What about the little persons that survived the journey with hearts that should never have beaten? That a tiny tiny hole or injury to the heart can stop it from beating. Science tells us that Connor shouldn't be here, but here he is.
I don't know about you, but I know that my God is a BIG BIG God. He doesn't always have to explain Himself. He has put Connor here to do big things. To touch peoples lives, to plant and even lead them into a personal relationship with Him. He's already reinforced in me to trust that God has a bigger plan then I can see or even understand. The Love and Sovereignty of God is enough.
Let's become comfortable with Difference! Its in that uncomfortableness that we draw close to Him and the unknown becomes familiar.
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