Yesterday we had a follow up appt. with Connors hearing Dr. She did an ABR test that takes about 3 hours. Connor was a champ and completely cooperated. Which means he slept peacefully in my arms. We have great news. His hearing has improved. She confirmed what our ENT Dr. Said, that his hearing loss is due to built up fluid and congestion. And he should grow out of it.
On another note pray for Hunter. He has his first case of head,foot and mouth. He's especially uncomfortable at night. Nothing like being sick around the holidays. Pray for our family that none of us get it. Especially Connor. We are on day 4 but just figured out last night what it was.
I'm on my iPad so this peck typing is killing me. Have a great Thanksgiving. We have so many things to be thankful for.
Tuesday, November 26, 2013
Friday, November 15, 2013
Connor's growing
I can't believe Connor will be 2 months tomorrow. The time goes by so fast. I told Jason the other day that I sometimes forget that Connor was diagnosed with DS. And that's the way it should be. Right. If I'm going to be honest, I think when I first heard that Connor had DS I felt a death sentence had been put on me. But that was only Satan stealing my Joy. I love the song, I'm trading my sorrows- because its true, Joy comes in the morning. That little boy has been such a joy to our family and he's only 2 months old. (well actually he's not always a joy at the wee hours of the morning. But I'm thankful. I continue to process the idea of Connor's diagnosis and what that means. And I keep thinking about how each family has their own sets of challenges, its just a part of life. When I was little I dreamed about being a mommy. Just like any girl does. But I never realized it was going to be so hard. I felt this way with Hunter too! Any time he got a cold or his eczema flared up, I'd call one of my closest friends who happens to be in the medical field and she would reassure me that all was fine. But being mom is a constant battle about making sure you make the right decisions for your kids.
I'll stop rambling and lets get to the update on whats been going on with us:I went to the Buddy Walk last Saturday. It was quick and I didn't get to stay very long, because I had to make it to my niece's first birthday party. It was emotional for me and I'm not sure why. I guess because it was awesome to see everyone rallying together. And that fact that I'm still processing everything.
We went to the Doctor's office for Connor's 2 month check up! He weighed in at 9 pounds 5 oz. and is 21 1/2 inches long. Our Dr. was very pleased with his growth. We also found out that Connor ended up getting approved for a shot called Synagis. Our Dr. had to do a peer to peer discussion with our Insurance company to get it approved. Apparently the shot is very expensive to produce so the insurance company buys it from the pharm company and they send it directly to the doctor's office with Connor's name on it. He will it a shot 1x a month until March to protect him from Respiratory Synctial Virus (RSV). You can go here to learn more about RSV http://kidshealth.org/parent/infections/lung/rsv.html
We have an appointment with the Occupational Therapist today and will continue to see her every other week.
Mr. Hunter is doing awesome at school. He walks right in and plays with his buddy Kane. We no longer need a snack or blanket. He has been getting in trouble for hitting. Really? My perfect little boy. LOL! So we are working on that with him. But the big news is that he turns 2 on Monday. Yep, you read that right. I can't believe my first baby is growing up so fast. He's a solid 30 pounds. And an absolute blast to be around. (When he's not whining)
Here's how you can pray for us:
Pray that I can start working on getting into a schedule with Connor, I like predictability and schedules. And Sleep! :)
Pray that Connor hits milestones the same time frame any other "normal" child would. In fact, pray that he exceeds expectations
Pray that Connor doesn't have a negative reaction to Synagis (RSV shot)
Pray for good health for both Connor and Hunter
Pray that Hunter never feels resentment for his brother. Especially if we have to spend more time going to appointments and tending to Connor
Pray for Jason. There are some compensation transitions at work and the prayer would be that it would benefit us and not hurt us.
Wow! That was a long blog. Thanks for sticking it out.
Lots of Love! Comment if you want to share something you would like for us to pray for!
I'll stop rambling and lets get to the update on whats been going on with us:I went to the Buddy Walk last Saturday. It was quick and I didn't get to stay very long, because I had to make it to my niece's first birthday party. It was emotional for me and I'm not sure why. I guess because it was awesome to see everyone rallying together. And that fact that I'm still processing everything.
We went to the Doctor's office for Connor's 2 month check up! He weighed in at 9 pounds 5 oz. and is 21 1/2 inches long. Our Dr. was very pleased with his growth. We also found out that Connor ended up getting approved for a shot called Synagis. Our Dr. had to do a peer to peer discussion with our Insurance company to get it approved. Apparently the shot is very expensive to produce so the insurance company buys it from the pharm company and they send it directly to the doctor's office with Connor's name on it. He will it a shot 1x a month until March to protect him from Respiratory Synctial Virus (RSV). You can go here to learn more about RSV http://kidshealth.org/parent/infections/lung/rsv.html
We have an appointment with the Occupational Therapist today and will continue to see her every other week.
Mr. Hunter is doing awesome at school. He walks right in and plays with his buddy Kane. We no longer need a snack or blanket. He has been getting in trouble for hitting. Really? My perfect little boy. LOL! So we are working on that with him. But the big news is that he turns 2 on Monday. Yep, you read that right. I can't believe my first baby is growing up so fast. He's a solid 30 pounds. And an absolute blast to be around. (When he's not whining)
Here's how you can pray for us:
Pray that I can start working on getting into a schedule with Connor, I like predictability and schedules. And Sleep! :)
Pray that Connor hits milestones the same time frame any other "normal" child would. In fact, pray that he exceeds expectations
Pray that Connor doesn't have a negative reaction to Synagis (RSV shot)
Pray for good health for both Connor and Hunter
Pray that Hunter never feels resentment for his brother. Especially if we have to spend more time going to appointments and tending to Connor
Pray for Jason. There are some compensation transitions at work and the prayer would be that it would benefit us and not hurt us.
Wow! That was a long blog. Thanks for sticking it out.
Lots of Love! Comment if you want to share something you would like for us to pray for!
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